Our Commitment to Patients and Advocacy Organizations
We at Cyclo Therapeutics are committed to collaborating with patients and families, as well as advocacy organizations around the world. Together, we share a common goal to raise awareness and improve the lives of patients, their families and caregivers affected by rare and neurological disorders. Our most advanced drug discovery program is focused on Niemann-Pick disease type C (NPC), a rare and genetic form of Niemann-Pick disease characterized by the body’s inability to transport cholesterol and other fats and oils inside of cells.
While a commitment to serving patients transcends every part of our organization, the Patient Advocacy function at Cyclo, serves as a liaison between our company and members of the patient and advocacy community. We work together in areas in mutual interest and in accordance with our company values and local country regulations, and we seek to work with Advocacy organizations that follow the same principles. We believe this connection to the patient community makes us stronger and more informed as a company, and it inspires us in our work.
At Cyclo Therapeutics, we:
- Believe the voice of the patient community is critical and should inform our decision-making process.
- Seek out feedback and perspectives from the patient community along our journey as a company and will share our progress and key learnings with you.
- Listen to and value collaboration with advocacy organizations and commit to supporting and working with organizations around the world that share our common values.
- Follow regulations set forth in countries that state how we can and cannot engage with patients and organizations.
- Respect the independence of the patient organizations that we work with and their important need to act autonomously.
- Persevere relentlessly in our scientific pursuits with the safety and best interests of the NPC community in mind.
- Focus upon our role of raising awareness and addressing the needs of the NPC community, but do not advocate for or promote specific therapies or treatment approaches.
Finally, aspire to continue to learn and evolve based on our engagement with the NPC community, and welcome the opportunity to hear from you.
Please reach out to us at lori.mckenna@cyclodex.com with feedback or suggestions.
Trappsol® Cyclo™ is not currently approved for any indication.
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